USMD-PKU.org
about us
WHO WE ARE:
Unified to Support Metabolic Disorders is a 501c3 nonprofit corporation that focuses on improving the lives of individuals with PKU through advocacy, education, support, awareness, and collaboration with IEM support organizations across the country.
We are an ALL VOLUNTEER organization which means your hard earned money goes directly to help those affected by the disorder. We are unique in that we support grassroots efforts across the country, when and where support is needed. We encourage unique and different ideas, and sharing of time and talents with each other to make our mission successful!
HISTORY:
Our organization was founded in 2005 by visionary individuals who believed we could unify for the common good and move past our differences to improve the lives of individuals with PKU around the country. We began as a small South Texas organization, and we have grown as we were needed to support families in other areas of the country.
Unified to Support Metabolic Disorders, Inc - Volunteer Board of Directors:
• Chairman of the Board – DeAnna Harner
• Jessica Kauffel, Missouri Parent of School-aged child with PKU
• Judy Owens, Texas Parent of a Teenager with PKU
• Kristen Vanags, Georgia Parent of a Toddler with PKU
• Stefani Ducote, Friend of PKU and Business Professional
• Stephanie Stremer, Wisconsin Adult with PKU and PADOW President
We are currently looking for new Directors and Officers. If you are interested, please email your letter of intent to DeAnna at usmd.info@gmail.com.
Unified to Support Metabolic Disorders, Inc - Volunteer Officers and Leaders:
- President – DeAnna Harner
- Treasurer – Michael Serafini
- Secretary – Judy Owens
If you would like to hold a local social event or fundraiser anywhere in the country to support our organization (in research or another area), please email us at at usmd.info@gmail.com for more details.
Our organization is governed by a codified set of bylaws. To view our rules of governance, please click this link : Unified to Support Metabolic Disorders, Inc. CONSTITUTION